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About me

Dulce
From the AVM SURVIVORS web site: "Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body". I am currently undergoing embolizations with Dr. Wayne Yakes @ the Swedish Medical Center in Englewood, CO every 8 weeks! Our lives are either planning a procedure, having a procedure or recovering from a procedure! The trick lately seems to be to keep the "bleeds" under control! My husband Mark is also my caregiver! He has become an expert wound care therapist, not to mention all around bundle of being just exactly what I need to get through the day and this ordeal we call an AVM! I recently finished 10 years of Embolizations w/Dr. Yakes and am finally ready for my next stage - Debulking and reconstructive surgery w/Dr. Robinson in CO - he is a dentist and plastic surgeon! Best advice to an avm patient - Stay positive and surround yourself with supportive people! Lots of faith, prayer and love are all crucial too!
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Check out these links!

  • Shalon's blog
  • Shalon's Website

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Cyndi's AVM journey

Check out my Pictures at the bottom of the page!

Skunk!

Friday, August 6, 2010

Happy Friday everyone! TGIF! I was remembering when Davis was little (about 4 years old), he used to think that saying "Skunk"! was like saying a "bad word"! Well, that's what I feel like saying today after having some bleeds - SKUNK! Sigh ...

Today is also my first day without any steroids since my emboloization in Denver! I'm not a happy camper right now! Not that I ever would be a happy camper - camping and I don't get along! No steroids to keep the swelling down means more pain! Yeah, the whole left side of my head hurts! Soon as I finish this, I'm going to bed for a much needed NAP!! Actually, a lot of the swelling inside my mouth has gone down, so it's a little easier to brush! Did you know that I have to use a child size toothbrush so that it will fit into my mouth? Mmmm hmmm.... I prefer Cinderella, but I'll take Snow white if I have to, ha,ha! Yeah, what with my avm and all, my mouth has been "frozen" I guess is one way of putting it, so I'm only able to open my mouth a bit - enough to eat and brush! I need to work with the Therabite again, I haven't done that in a while, due to swelling and pain! I'm gonna wrap this up since I'm falling asleep @ the computer! Y'all have an aweswome weekend!

Love,

Cyndi

Posted by Dulce at 5:27 PM  

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