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About me

Dulce
From the AVM SURVIVORS web site: "Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body". I am currently undergoing embolizations with Dr. Wayne Yakes @ the Swedish Medical Center in Englewood, CO every 8 weeks! Our lives are either planning a procedure, having a procedure or recovering from a procedure! The trick lately seems to be to keep the "bleeds" under control! My husband Mark is also my caregiver! He has become an expert wound care therapist, not to mention all around bundle of being just exactly what I need to get through the day and this ordeal we call an AVM! I recently finished 10 years of Embolizations w/Dr. Yakes and am finally ready for my next stage - Debulking and reconstructive surgery w/Dr. Robinson in CO - he is a dentist and plastic surgeon! Best advice to an avm patient - Stay positive and surround yourself with supportive people! Lots of faith, prayer and love are all crucial too!
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Check out these links!

  • Shalon's blog
  • Shalon's Website

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Cyndi's AVM journey

Check out my Pictures at the bottom of the page!

Set back

Thursday, August 5, 2010

Hi Everyone! How are you? Is it hot out there or what? Sometimes I wonder whether it's even worth leaving the building for lunch - you can work up a sweat just walking from the office to your car! And that's because I finally got a handicapp thingy to hang off rear view mirror! Yeah, Celia had been after me to ask my doctor for one - I haul a cart full of medical supplies and all my needs every day to and from the office, and I do have some back/knee problems, so that really does come in handy!

Anyway, I was going to write how lately, I've been having bleeds from inside my mouth! I started having them a couple of weeks before I went back to CO and had hoped that after the embolization Dr. Yakes did, that I wouldn't bleed anymore from inside my mouth! Wrong! Yesterday I was in the bathroom about to wash my face, when I decided to bend down to pick up Hanz. Right then I could tell my mouth started filling up with blood! Gosh darn it! It lasted about 5 minutes and I believe it happened again in the evening for just a bit.

Well, this morning, I sat up in bed and said, "Good morning Hanz", and right then blood just came out of my mouth and on to the top sheet! Course I went to the bathroom sink and Mark took the top sheet off the bed and put it in the wash! So that is how I started my day! Luckily, these bleeds don't last long, but I DO Ok, I need to hit the sack! More later!

Cyndi

Posted by Dulce at 11:47 PM  

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