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About me

Dulce
From the AVM SURVIVORS web site: "Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body". I am currently undergoing embolizations with Dr. Wayne Yakes @ the Swedish Medical Center in Englewood, CO every 8 weeks! Our lives are either planning a procedure, having a procedure or recovering from a procedure! The trick lately seems to be to keep the "bleeds" under control! My husband Mark is also my caregiver! He has become an expert wound care therapist, not to mention all around bundle of being just exactly what I need to get through the day and this ordeal we call an AVM! I recently finished 10 years of Embolizations w/Dr. Yakes and am finally ready for my next stage - Debulking and reconstructive surgery w/Dr. Robinson in CO - he is a dentist and plastic surgeon! Best advice to an avm patient - Stay positive and surround yourself with supportive people! Lots of faith, prayer and love are all crucial too!
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Check out these links!

  • Shalon's blog
  • Shalon's Website

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      • My Avm Buddy, Shalon!
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Cyndi's AVM journey

Check out my Pictures at the bottom of the page!

OMG!

Saturday, August 7, 2010



Hi Everyone! Wow, its finally the weekend and already I've had all sorts of adventures! Would you believe that I was @ the end of this blog and I totally wiped it out by accident? Yup! So here goes again!

First I have to say that I'm calling this O-M-G in honor of one of my fun, animal loving co-workers named Mary Jo! She's always saying OMG! The way she says it makes it funny for me every time! Her daughter has a poodle named Sammie that Mary Jo gets to take care of now and then, so she and I trade Sammie and Hanz stories and share pictures on our phones!

On Friday, Mark and I were leaving for work and gave each other a kiss goodbye, when I felt my mouth filling up with blood! It was really comming out, because I felt I had to open my mouth and just let it fall out! Told Mark to open the front door again so I could rinse my mouth out in the bathroom! Would you believe after all that, I still made it to work on time?! Then, during my time to cover the front desk for lunch, I started having another bleed! We aren't supposed to leave the front area unattended, but I knew I needed to get to the bathroom fast! I ran to my friend Diana's office first - I pointed to my mouth and opened it slightly and she goes, "OK"! She knew what was happening and by the time I got back, she already had gotten someone to cover the front desk for me! Not really happy about these things going on @ work! Now I take my toothbrush/paste to work every day in case this happens, so I won't have blood on my breath - ugh! Actually, I had been having these bleeds even before going to CO this past time and I was hoping that w/Dr. Yakes doing an embolization, that would put an end to these bleeds! Meanwhile, I have run out of the second round of steroids my Primary Care Physician put me on and I had been feeling more pain as well! Dr. Yakes always sends me home on Prednisone 20 mg., but Dr. Boynton put me on Medrol 4mg. I didn't like the latter because they gave me night sweats bad!

So, after a long day, I get home and Mark decides to make nachos for dinner! Of course those must be chased by a MARK-a-rita! I usually have a couple of dollops of the frozen concoction, but this night, I decided to have a little extra figuring, what the heck! Well, I woke up sweating and nauseous @ 5:00 a.m.! I knew I was going to need to be close to the bathroom and sure enough - had to see those nachos again! Then I caught sight of myself in the mirror and I looked horrible! I was all swollen again! My eye was almost swollen shut and the left side of my lip/face was very swollen too! It took me a while to figure out what happened! Good thing I write all my medication down! I had been off steroids completely for 2 days, so my pain was getting greater! At this point I didn't think either doctor would give me another round of steroids, so I thought I could man up and deal with it! Course my way of "dealing with it" meant taking too many pain pills!! Mmmm.....Hmmm....

I had been reading the part in Breaking Dawn where Bella is nauseous and I didn't even want to read about that! After sleeping on and off most of the today, I called up to CO and got the Physician Asst.on call, Kelly and she called me back right away! She called another round of Prednisone 20mg so I can get back on track! All I've eaten all day is a cup of applesauce! I attempted one of my favorite snacks, a glass of milk and some bread w/blackberry preserves on it! Kept that down, so I guess I'll live! Took a shower so I feel better.

Earlier on Friday, I noticed that I took my main pain killer,

the Oxycontin 40 mg @ 6:30 a.m.

the Gabapentin 300 mg. @ 8:30 a.m (this is safe-@the hospital they give me
both of these together!)

Here comes the mistake: taking the Lortab7.5-500 mg @ 9:30 a.m.!!!

So she decides to repeat the mistake she hasn't realized yet that she's made later on in the day by taking:

Oxy @3pm
Gaba @ 4:30pm
Lortab @ 7pm!

Yeah, my body is going, "I don't think you should have so many narcotics in your system little girl"! Course the Gabapentin isn't a narcotic, but I was taking the other two, too close together in time! UGH!

I should have realized this on Thursday - I had lunch w/my co-worker/friend Diana and my husband Mark. We were all talking and eating and then Mark reached out to grab my hand. My first thought was, "oh, he's being romantic and wants to hold my hand". The reality of it was, I hadn't realized that my hand was shaking! Enough so that Mark held it to stop it from shaking - yikes! That should have been my first clue to check out my meds I guess!

My buddy Felice called earlier this evening - she is such a great friend! She knew I had read Kenneth Folletts The Pillars of the Earth that is curently showing on Starz. She was watching it and says it is awesome! She is trying to tape it for me and then send it in the mail because she knows I don't have Starz! When I get done with this horrible AVM, I'm going to try and be a super good friend just like my buddies have been to me! Between Dorinda, Felice, Patty and Sylvia, I'm blessed to have fun, prayer and love all rolled into one!

I'd better go, I'm in pain and falling asleep! Take care!

Love,


Cyndi

I'll post a couple photos later!

Posted by Dulce at 5:33 PM  

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