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About me

Dulce
From the AVM SURVIVORS web site: "Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body". I am currently undergoing embolizations with Dr. Wayne Yakes @ the Swedish Medical Center in Englewood, CO every 8 weeks! Our lives are either planning a procedure, having a procedure or recovering from a procedure! The trick lately seems to be to keep the "bleeds" under control! My husband Mark is also my caregiver! He has become an expert wound care therapist, not to mention all around bundle of being just exactly what I need to get through the day and this ordeal we call an AVM! I recently finished 10 years of Embolizations w/Dr. Yakes and am finally ready for my next stage - Debulking and reconstructive surgery w/Dr. Robinson in CO - he is a dentist and plastic surgeon! Best advice to an avm patient - Stay positive and surround yourself with supportive people! Lots of faith, prayer and love are all crucial too!
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Check out these links!

  • Shalon's blog
  • Shalon's Website

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Cyndi's AVM journey

Check out my Pictures at the bottom of the page!

You're kidding .... right?

Sunday, April 5, 2009

Good Morning Everyone!

Hope you started your morning off better than I did! You guessed it! Another bleed! Yikes! It was inevitable - I had to hack and get that darned phlegm out and just with the force of that, the blood started. UGH! I was trying to cough that out, couldn't breathe because of the blob in my throat and all the while I'm looking in the mirror as the spot of blood on my dressing is getting larger! I pulled my nightgown off, grabbed a towel and hollered for Mark! I was able to get the tegaderm off and got pressure put on the area and it stopped pretty quick! My fear now, is being in Mass and feeling like I need to hack and heaven forbid - have a bleed!!! I'm going to have faith that this doesn't happen! There should be a full house since it's Palm Sunday! I best go get ready - just wanted to give you an update on how I started my morning!

Love,

Cyndi

Posted by Dulce at 7:53 AM  

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