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About me

Dulce
From the AVM SURVIVORS web site: "Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body". I am currently undergoing embolizations with Dr. Wayne Yakes @ the Swedish Medical Center in Englewood, CO every 8 weeks! Our lives are either planning a procedure, having a procedure or recovering from a procedure! The trick lately seems to be to keep the "bleeds" under control! My husband Mark is also my caregiver! He has become an expert wound care therapist, not to mention all around bundle of being just exactly what I need to get through the day and this ordeal we call an AVM! I recently finished 10 years of Embolizations w/Dr. Yakes and am finally ready for my next stage - Debulking and reconstructive surgery w/Dr. Robinson in CO - he is a dentist and plastic surgeon! Best advice to an avm patient - Stay positive and surround yourself with supportive people! Lots of faith, prayer and love are all crucial too!
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Check out these links!

  • Shalon's blog
  • Shalon's Website

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Cyndi's AVM journey

Check out my Pictures at the bottom of the page!

Happy Easter!

Saturday, April 11, 2009






Good Morning Everyone!

Hope all of you are doing well and getting ready for Easter tomorrow! Mark finally got up and he will be making pancakes for breakfast! I thought I would fill you in on a couple of things and add some photos to go with it! Remember I mentioned that Mark checks on me during the night to see how my dressing is looking? The other day Mark had seen some red spots on the dressing, but said I was sleeping so well, he didn't want to bother me! Here is a photo of what he saw. Gross, huh? Here is what the seaweed dressing looks like, and then what the wound looks like when Mark removes the dressing! So now you know what's going on under that dressing! The wound care staff @ Spohn is doing an excellent job, as is my Mark! Dr. Larkin is always telling me what a great job Mark does w/wound care for me!

Last night Mark was playing Spider Solitaire on the computer and I was making a card for a county employee/friend that had surprised me w/a lovely gift recently - when I felt something on my neck. Yup - I was having a bleed! Darn! I had just showered and was wearing a nice nightgown that Mark had chosen for me in Colorado on that trip that both he and Celia went w/me on last year! Luckily, it was a slow bleed, so I don't think I got too much blood on the nightgown! I quickly took that off and changed into something else once the bleeding stopped!

On a brighter note ... nephew Davis is in town from college - A&M Galveston! Celia invited us to join her and Davis for dinner @ La Playa last night! See photo! Davis is making excellent grades, and is in a band that is playing music he has written!

Last, but certainly not least - here is a picture of mommies angel a/k/a Hanz! I had told my mom I wanted to get Hanz an Easter toy, so when she and I had gone to HEB, mom and I both liked this yellow duck stuffed toy! You should have seen Hanz when I handed that over to him! He took to it right away and took off w/it in his mouth! Plus, Vicente had won a puppy blanket the other day, so Hanz ended up with that! Is my kid spoiled or what? He brings us so much joy, that we enjoy spoiling him!

Shalon just got back from having an embolization done w/Dr. Yakes! Let's all keep her in our prayers and check in on her blog to see how her trip went!

Happy Easter Everyone! We love you all and thank you so much for all your prayers and support! Thank you!

Mark & Cyndi

P.S. Celia invited us over to their place for dinner Thursday night! We had not seen Greg in forever, so it was great spending time with him! He looks very good, considering he is exhausted from traveling to Houston every weekend to see his mother that has been ill and in the hospital. Markie prepared the dinner - Sushi! It was awesome and we really enjoyed it! Thanks Markie Poo Hoo!

We're also very happy that Mom and Vicente are back from their vacation safe and sound!

Posted by Dulce at 9:48 AM  

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