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About me

Dulce
From the AVM SURVIVORS web site: "Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body". I am currently undergoing embolizations with Dr. Wayne Yakes @ the Swedish Medical Center in Englewood, CO every 8 weeks! Our lives are either planning a procedure, having a procedure or recovering from a procedure! The trick lately seems to be to keep the "bleeds" under control! My husband Mark is also my caregiver! He has become an expert wound care therapist, not to mention all around bundle of being just exactly what I need to get through the day and this ordeal we call an AVM! I recently finished 10 years of Embolizations w/Dr. Yakes and am finally ready for my next stage - Debulking and reconstructive surgery w/Dr. Robinson in CO - he is a dentist and plastic surgeon! Best advice to an avm patient - Stay positive and surround yourself with supportive people! Lots of faith, prayer and love are all crucial too!
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Check out these links!

  • Shalon's blog
  • Shalon's Website

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Cyndi's AVM journey

Check out my Pictures at the bottom of the page!

My buddy, Shalon!

Tuesday, April 14, 2009



Hi Everyone!

Did everyone have a nice Easter? We had a great one! Nephew Davis was in town from A&M Galveston, and Mark came to Mass as well - so we spent time w/both boys! Mom and Vicente joined us for Mass @ Cathedral - unfortunately, the only one missing from our family was Greg. He's been in Houston though - while his mom has been ill. Celia of course was in the choir loft!

I've decided I just had to share this photo with you of my bud Shalon! She is just looking too cute in her glamorous hospital gown and very cool cap that she made! I had a defendant ask me today how I stay so upbeat and deal w/all my avm stuff ... and I told her I surround myself w/great people that help me stay positive and get through these rough times! Told her about how Shalon brings so many avmers together - and look at her! She is making the best of her situation by making a bright, pretty gown and getting away from those dreary hospital gowns! She set me up on my blog and she is just a great role model for anyone going through a lot - like our embolizations and everything these avms deal out to us!

I just wrote a note to my favorite post-op nurse, Rick Smith! I'm sure hoping he is working when I have my next embolization on the 30th of this month! Rick makes waking up from that procedure as easy as possible! See reminder photo of who Rick is! I can't emphasize enough what an awesome job Rick does! He is anticipating anything I need before I even ask for it! He makes a bad experience as comfortable as possible for the patient - thanks Rick!

Ok! This was just a quick note! I go to wound care in the morning and I'm counting the days until I see Dr. Yakes again! Take care all!

Love,

Cyndi

Posted by Dulce at 11:08 PM  

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