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About me

Dulce
From the AVM SURVIVORS web site: "Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body". I am currently undergoing embolizations with Dr. Wayne Yakes @ the Swedish Medical Center in Englewood, CO every 8 weeks! Our lives are either planning a procedure, having a procedure or recovering from a procedure! The trick lately seems to be to keep the "bleeds" under control! My husband Mark is also my caregiver! He has become an expert wound care therapist, not to mention all around bundle of being just exactly what I need to get through the day and this ordeal we call an AVM! I recently finished 10 years of Embolizations w/Dr. Yakes and am finally ready for my next stage - Debulking and reconstructive surgery w/Dr. Robinson in CO - he is a dentist and plastic surgeon! Best advice to an avm patient - Stay positive and surround yourself with supportive people! Lots of faith, prayer and love are all crucial too!
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Check out these links!

  • Shalon's blog
  • Shalon's Website

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      • Timeline photos!
      • Holy Saba! I named my kid Mackerel!
      • August 29th - New Ear Tube!
      • August 26, 2008
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      • The beginning of my story...
      • Cyndi's New Blog!

Cyndi's AVM journey

Check out my Pictures at the bottom of the page!

Holy Saba! I named my kid Mackerel!

Saturday, August 30, 2008




Greetings everyone!

How's it goin'? Well, @ my sister Celia's suggestion, she and her son Mark took my Mark and I to dinner this evening! We went to a sushi place downtown - and since our nephew Mark had worked in a sushi restaurant as a sushi chef - we let him order our dinner! Imagine my surprise when I looked down @ the menu and saw SABA (Mackerel)! Yikes! What? Here I thought my little Saba had this exotic name and come to find it means Mackerel?! Dang! Oh well - I still love her name - I think it suits her! She's just too darned cute and she has an aura about her that makes her popular! Actually, Saba is also the smallest island of the Netherlands Antilles! Wow! Who knew? I'll have to ask "the real Saba" about it next time I see her in CO! She's a doll! I haven't seen her the last 2 procedures I've had @ Swedish - she's either been off or just not working on the floor I've been on! Dr. Yakes patients are either on 6th or 9th floor. FYI - Saba has "won" the distinction of being Employee of the Year @ Swedish - apparently I'm not the only one that thinks she's a doll - isn't she beautiful?!

I'll have to wind this up soon, I took some meds that are making me drowsy! The doctor in CO is trying a new med on me - Neurontin and that knocks me out! Right now I'm staggering 4 of those daily and getting some much needed rest!

Hopefully everyone enjoys this nice long weekend! My sister Celia has generously been sharing some books with me - the Stephenie Meyer series, so we're enjoying those, as both of us are avid readers! I'm half way through the second one (New Moon) and she brought over the third one in the series this evening (Eclipse)!

Celia also brought me a couple pair of sandals that no longer fit her - and they're just right for me! Not to leave my Mark out of the loop - she brought over some baking pans that her mother-in-law no longer used! We love these fun goodies!

Celia and Markie stayed over for a bit and played Farkle and got a kick out of our furry kids, Dulce, Midori and Giovanni! They have such unique personalities and are definitely a handful! Midori tends to be on the "heavy" side, and Markie accurately described her as an "ottoman"! That's hilarious! Poor Midori! Dulce was all over Celia, and Giovanni tends to hover around everyones feet! That and/or is snuggling up to my Marks neck/chin! It's a shame that Greg and Davis couldn't join us this time!

Right now my avm is in a passive mode and I've got my pain under control, so I am a happy camper! Thanks to everyone for their prayers as I am doing well right now! I am grateful to be feeling well enough to have a great evening with my family without having any avm incidents!

Much love to all! Keep checking back for updates on my avm world!

Cyndi

P.S. As always, please do keep up w/Shalons site as well! http://sites.google.com/site/shalonsavm/Home

She has done so much for me in just knowing I'm not out there alone! She is an amazing bundle of energy, knowledge and all heart! Shalon is bringing so many people together and has gotten me excited about having a site and sharing all my adventures with all of you! Shalon actually has two sites and is always updating them! You must read Keiths story! Thanks Shalon - hugs!

Posted by Dulce at 11:30 PM  

1 comments:

ShalonAVM said...

Hey Cyndi!!! I'm so excited to see all your blog postings. You are a regular blog expert now :)

Thanks so much for mentioning my site and all the compliments. You are too kind!

xoxo
Shalon

August 31, 2008 at 10:40 AM  

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