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About me

Dulce
From the AVM SURVIVORS web site: "Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body". I am currently undergoing embolizations with Dr. Wayne Yakes @ the Swedish Medical Center in Englewood, CO every 8 weeks! Our lives are either planning a procedure, having a procedure or recovering from a procedure! The trick lately seems to be to keep the "bleeds" under control! My husband Mark is also my caregiver! He has become an expert wound care therapist, not to mention all around bundle of being just exactly what I need to get through the day and this ordeal we call an AVM! I recently finished 10 years of Embolizations w/Dr. Yakes and am finally ready for my next stage - Debulking and reconstructive surgery w/Dr. Robinson in CO - he is a dentist and plastic surgeon! Best advice to an avm patient - Stay positive and surround yourself with supportive people! Lots of faith, prayer and love are all crucial too!
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Check out these links!

  • Shalon's blog
  • Shalon's Website

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      • Timeline photos!
      • Holy Saba! I named my kid Mackerel!
      • August 29th - New Ear Tube!
      • August 26, 2008
      • Denver 27
      • The beginning of my story...
      • Cyndi's New Blog!

Cyndi's AVM journey

Check out my Pictures at the bottom of the page!

August 29th - New Ear Tube!

Friday, August 29, 2008


Hi Everyone!

Well, since I had already taken some time off work (today and Tuesday) - I decided to have a little necessary work done on myself too! The past year, I've had to have a tube put in my ear to allow drainage for fluids normally absorbed by the body - but w/me - the avm isn't allowing that to happen! So, if I don't have that tube in my ear, I just hear my pulse in my left ear and can't hear much else! That gets old real quick - so I knew it was time for a tune up! The ENT I had been seeing moved to FL, so this would be my first time to get a tube put in W/Dr. Zane! So this morning I got Saba dressed up and we headed to the doctors office. There was a 2 year old in the waiting area that kept running away from her mom and making a bee line for Saba! The mom kept telling her, "that's not your baby"! For those of you tuning in late ... Saba is my "therapy bear"! A co-worker had taken her nephews to the Build a Bear place in San Antonio, and got herself a friend too. Once I saw hers, I had to have one! Named after one of the techs @ Swedish Medical Center that is from Eastern Ethiopia, Saba accompanies me all over town! I like taking her w/me to the grocery store, Barnes & Noble or just running errands! Of course she's always a big hit! Saba's favorite place to go? Grandma Mary's for game night! Our family enjoys getting together to play Mexican Train, Farkle or just eat and visit w/each other and Saba is a big part of our family now! Hey, I figure ... you know what? People are going to stare @ me anyway w/the avm - so what if I'm almost 50 and carry a bear? She makes me feel better! Back to the ear now!

Had to have a hearing test done first, then in a few minutes, Dr. Zane had that t-tube put in my ear! I had been in his office a couple weeks ago, and had mentioned Shalons web site to him. Dr. Zane told me he checked out Shalons site and really enjoyed it! I tell everyone that they can get to my blog from that site as well!

Met Mark for lunch and then came home do a load of wash or two! So glad it's the weekend! On the way home from work, Mark picked up some wound care supplies that came in - the Aquacel ag is what is helping the wound on my left cheek heal really well!

Hello to everyone!

Cyndi Schuman

Posted by Dulce at 3:31 PM  

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