August 26, 2008

Hi again!

Just for fun, I thought we would ad some photos of my little Saba! Our family was very involved in the Olympics as you can see!

Our favorite of course was Michael Phelps! Saba made sure she had the right suit, swimcap and goggles! Of course we had to be involved in the gold medal ceremony!

Ok! Back to avm stuff! I am doing great so far! Of course I'm on steroids - I only have 2 days left of them, darn! No more bleeds - which is awesome! Mark has been doing an amazing job keeping my wound area clean and dressed, so it is healing nicely! We're hoping by the time we go back to CO Oct. 6th, 7th and 8th - that the wound area will finally be closed after being so deep! Mark is so patient and takes the time to make sure the area is clean, puts more ointment, layers of dressings and makes sure we have all the supplies necessary! I'm currently trying to get off the Percocet and on to another new med that is not a narcotic! It's knocking me out though - but @ least I am getting some much needed rest! The one good thing is I've lost some weight. W/the meds, I can't drink and sometimes don't have much of an appetite. Right now I do though, w/the steroids! I'm just taking it one day @ a time and doing what I need to survive!
Thank you family and friends for looking in on myself and Shalons web sites! Shalon came along right when I needed that extra boost in dealing w/this avm! She is bringing so many people together that either have avms, or know someone that has one! Her web site is full of good, medical information and she puts a lot of work into it! I'm hoping in the future to make sure she and I meet up again during one of our appointments! Shalon does not stay overnight like I do though - she gets sent home after being in recovery for a while. I've come to like staying overnight because I get excellent care from the nurses @ Swedish and they have become friends! Here I am with a new nurse to me - her name is Gina and she and I bonded over knowing we love to read! She had just finished reading Pillars of the Earth, a recent favorite book of mine!
Please do check back periodically on both our sites, as I'm sure we will do our best to keep you informed on the latest! Thank you for all your prayers and support!

Cyndi Schuman