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About me

Dulce
From the AVM SURVIVORS web site: "Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body". I am currently undergoing embolizations with Dr. Wayne Yakes @ the Swedish Medical Center in Englewood, CO every 8 weeks! Our lives are either planning a procedure, having a procedure or recovering from a procedure! The trick lately seems to be to keep the "bleeds" under control! My husband Mark is also my caregiver! He has become an expert wound care therapist, not to mention all around bundle of being just exactly what I need to get through the day and this ordeal we call an AVM! I recently finished 10 years of Embolizations w/Dr. Yakes and am finally ready for my next stage - Debulking and reconstructive surgery w/Dr. Robinson in CO - he is a dentist and plastic surgeon! Best advice to an avm patient - Stay positive and surround yourself with supportive people! Lots of faith, prayer and love are all crucial too!
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Check out these links!

  • Shalon's blog
  • Shalon's Website

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Cyndi's AVM journey

Check out my Pictures at the bottom of the page!

P.S. August 2012

Monday, August 27, 2012


Hi again! It's me wanting to add a little more to what I just went through. Returned to work today - so happy to not be in pain, bleeding or too much swelling! Can't help but feel wary of still having a spontaneous bleed - all I can do is pray for the best! My family, friends and co-workers are awesome and are always there for me! I especially want to thank Shalon Whitgob - a fellow avm-er, that has given me so much hope in knowing that there is an end to this horrible curse of an avm! It is a complicated abnormality that I don't think people quite grasp the severity of! I have learned so much along the way - dealing with pain and obstacles sometimes too much to handle! I wanted to make sure some of you got to see some of the photos of Shalon's Journey as well - you can get to her site from mine! She also has an amazing husband and family/friends for a support system! I can't emphasize enough what a big part all of you play in my life. Just knowing your thoughts and prayer are with us, as we manage to do the best we can during this time! I look forward to this being over one day and would love to continue my life, as sometimes it feels like I'm on hold! Can't travel for pleasure or do too too much w/some of my limitations - but doing pretty well overall right now!
Thanks again for keeping up with me!
Cyndi

Posted by Dulce at 9:24 PM  

1 comments:

Patty said...

You are an inspiration Cyndi!!! Thanks for sharing this. Yeah, Mark's OK too -- but can he dance? :^)

August 28, 2012 at 10:17 PM  

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