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About me

Dulce
From the AVM SURVIVORS web site: "Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body". I am currently undergoing embolizations with Dr. Wayne Yakes @ the Swedish Medical Center in Englewood, CO every 8 weeks! Our lives are either planning a procedure, having a procedure or recovering from a procedure! The trick lately seems to be to keep the "bleeds" under control! My husband Mark is also my caregiver! He has become an expert wound care therapist, not to mention all around bundle of being just exactly what I need to get through the day and this ordeal we call an AVM! I recently finished 10 years of Embolizations w/Dr. Yakes and am finally ready for my next stage - Debulking and reconstructive surgery w/Dr. Robinson in CO - he is a dentist and plastic surgeon! Best advice to an avm patient - Stay positive and surround yourself with supportive people! Lots of faith, prayer and love are all crucial too!
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Check out these links!

  • Shalon's blog
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Cyndi's AVM journey

Check out my Pictures at the bottom of the page!

Friday, August 31, 2012

Greetings Everyone! Hoping y'all are planning something special for the long weekend! I had a little setback yesterday, so I stayed home from work. Woke up @ 2am because I could feel the inside of my mouth was filling up with blood - ugh! Rushed to the bathroom sink to spit out blood clots and was able to control it within a few minutes. Slept w/my mouth packed in gauze - so disappointing! With as much alcohol as Dr. Yakes used, I really hoped I would be having a major turnaround and could finally rest from having these bleeds! Of course when I removed the gauze and brushed my teeth in the morning, I had a little more bleeding, so I decided to stay home from work. Just did not want to have to deal with having an episode @ work!
My sister Celia and her son (my gorgeous nephew) Mark came by to see me and brought me lunch! They are so generous with their time, love and support in every way and we are so grateful! My brother-in-law Greg will be celebrating his birthday Sept. 1st - he is the rock in our family! My father-in-law George celebrates his birthday a few days later too! Mark will be traveling to see his parents soon as they celebrate 60 years of marriage! Wow! Such role models in so many ways - very blessed to have their strong foundation in our lives!
I continue my IV antibiotics, since that pseudomonous infection had reached the bone and is hard to get rid of. Got a call from one of Dr. Yakes P.A.'s yesterday, checking up on my recovery. I am amazed that I have no pain and minimal swelling! Anxious to get to work today and function normally - let's pray the bleeding goes away! Thank you all for keeping my spirits up - I was telling the P.A. how awesome I think everyone @ Swedish is as well! Have a safe, happy weekend!! I'm hoping to clean house and enjoy Hanz and Bella! Ciao!
Cyndi

Posted by Dulce at 7:02 AM  

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