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About me

Dulce
From the AVM SURVIVORS web site: "Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body". I am currently undergoing embolizations with Dr. Wayne Yakes @ the Swedish Medical Center in Englewood, CO every 8 weeks! Our lives are either planning a procedure, having a procedure or recovering from a procedure! The trick lately seems to be to keep the "bleeds" under control! My husband Mark is also my caregiver! He has become an expert wound care therapist, not to mention all around bundle of being just exactly what I need to get through the day and this ordeal we call an AVM! I recently finished 10 years of Embolizations w/Dr. Yakes and am finally ready for my next stage - Debulking and reconstructive surgery w/Dr. Robinson in CO - he is a dentist and plastic surgeon! Best advice to an avm patient - Stay positive and surround yourself with supportive people! Lots of faith, prayer and love are all crucial too!
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Cyndi's AVM journey

Check out my Pictures at the bottom of the page!

Wound Care Monday

Monday, February 23, 2009






Hi Everyone! Here I am again! I had my usual wound care appt. today and this time Mark was able to come with me, as he had taken the day off work to get a few things done around the house! It's always comforting to me having Mark with me, and it's important to keep him up on the latest the doctor has to say about my wound care progress! Since I've been going to wound care and chatting about these folks, I thought it would be nice to show you what they look like! So here goes! The first photo is of Eric - he is usually the one that takes my vital signs when I arrive and am put in a room! Eric is very easy to talk to and a nice guy!

After Eric takes my blood pressure and temperature, it's time for Noel to come in and start removing my dressing! Noel is my favorite RN - he is very knowledgeable regarding wound care! Noel and Mark got into a conversation about the Phillipines (where Noel is from) because of something that had been on the Discover Channel or National Geographic Chanel - ugh! Anyway, here is a photo of Noel working on me! Ok, I'll throw in another photo of Noel and I just for good measure!

Of course I have to include photos of Dr. Larkin! She is the one that tells me I'm aging her when I have a bleed during wound care! Dr. Larkin wanted to make sure I told you that had she known she was being photographed, then she would have done something w/her hair! Everyone @ Spohn Wound Care has been awesome and very professional! Dr. Larkin said the lower of my two wounds had basically healed - but the wound that is higher up, is the one I had a bleed on Friday from. Wish that area would heal closed soon so I could be through w/the bleeding!

Ok! I may update this a bit tomorrow - for now, Mark has to put some ointment on my ear before both of us fall asleep! We're trying to make it as far as watching Headlines on Jay Leno!

Thank you all for your love and support!

Cyndi

Posted by Dulce at 10:12 PM  

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