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About me

Dulce
From the AVM SURVIVORS web site: "Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body". I am currently undergoing embolizations with Dr. Wayne Yakes @ the Swedish Medical Center in Englewood, CO every 8 weeks! Our lives are either planning a procedure, having a procedure or recovering from a procedure! The trick lately seems to be to keep the "bleeds" under control! My husband Mark is also my caregiver! He has become an expert wound care therapist, not to mention all around bundle of being just exactly what I need to get through the day and this ordeal we call an AVM! I recently finished 10 years of Embolizations w/Dr. Yakes and am finally ready for my next stage - Debulking and reconstructive surgery w/Dr. Robinson in CO - he is a dentist and plastic surgeon! Best advice to an avm patient - Stay positive and surround yourself with supportive people! Lots of faith, prayer and love are all crucial too!
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  • Shalon's blog
  • Shalon's Website

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Cyndi's AVM journey

Check out my Pictures at the bottom of the page!

Old photo/New bleed

Saturday, February 21, 2009


Hello again!

Unfortunately, I'm blogging to report another bleed! Ugh! This happened during lunch on Friday. I was having lunch w/Mark and my co-worker and friend Diana, when I felt something on my neck! Mark and Diana had been talking and I asked, "Am I bleeding"? They both jumped quickly because the blood was coming fast! I grabbed some napkins and headed to the restroom, while Mark ran out to the car to get my wound care bag! I had to peel the dressing off my face, all the while trying to keep the blood from getting everywhere! I had gone to the ladies room and Mark of course had to go in there to help me! A little bit later we hear a knock on the door - a lady wanted to use the facilities, but Mark told her his wife was having a problem in there right now. We tried to put some surgicel on there, but the blood was just streaming out and we needed to keep putting pressure on there some more! Finally, it seemed like the bleeding had stopped, so we were able to put the surgicel on the area it had been bleeding from! For a split second I considered taking the rest of the afternoon off work, but once we got everything under control, I decided I may as well finish the work day off! Had to clean up the floor a bit - got some blood on my tennis shoes and my t-shirt, but no big deal. My t-shirt was black, so the blood wasn't noticable. So glad Mark was w/me - it was a little tough to get that bleed under control!

I was just looking @ the clock once I was back to work, looking for it to be five o'clock! I wanted to go home and put my jammies on and get comfy w/my little Hanz! I had an appt. right after work to have an MRI done on my left knee, since it's been hurting! Luckily, the radiology place is only a few blocks from our house and I just had to take my tennis shoes off for the procedure! I guess I'll know the results some time next week. I'm thinking those darned Crocs I love(d) to wear ruined my feet! They have no arch support and I need that bad! So, I'm back to wearing my tennis shoes all the time!

I just got back from running a few errands - I was @ Wal-mart looking @ in the pharmacy area, when I felt a hand on my shoulder. I turned expecting to see someone I knew, but no. It was an old lady that asked, "Did you get burned"? So I had to explain the whole avm thing. She didn't say much afterwards. I really DO NOT like to be approached like that. At least there are times after an experience like that the person will say something like, "well we'll keep you in our prayers" or "Ill pray for you". I just wish everyone would keep their curiosity in check!

Well, got lots to do around the house! Here is an old photo that Celia found - I'm guessing we're in our early 20's! Funny, huh?

Love to all!

Cyndi

Posted by Dulce at 1:09 PM  

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