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About me

Dulce
From the AVM SURVIVORS web site: "Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body". I am currently undergoing embolizations with Dr. Wayne Yakes @ the Swedish Medical Center in Englewood, CO every 8 weeks! Our lives are either planning a procedure, having a procedure or recovering from a procedure! The trick lately seems to be to keep the "bleeds" under control! My husband Mark is also my caregiver! He has become an expert wound care therapist, not to mention all around bundle of being just exactly what I need to get through the day and this ordeal we call an AVM! I recently finished 10 years of Embolizations w/Dr. Yakes and am finally ready for my next stage - Debulking and reconstructive surgery w/Dr. Robinson in CO - he is a dentist and plastic surgeon! Best advice to an avm patient - Stay positive and surround yourself with supportive people! Lots of faith, prayer and love are all crucial too!
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  • Shalon's blog
  • Shalon's Website

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      • My Sister ... (Chapter 2)
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Cyndi's AVM journey

Check out my Pictures at the bottom of the page!

My Sister ... (Chapter 2)

Thursday, November 27, 2008





Happy Thanksgiving everyone! Wow - we made it home for the holiday! Our family here kept worrying about whether we would make it home in time for Thanksgiving - we kept telling the PA's and nurses @ Swedish to set extra places @ the table for us! I still can't believe I'm home! Can't kiss Mark - since my bottom lip is extremely swollen!

The great news is - I think I finally stopped oozing, so I don't have to keep dabbing that area anymore. You cannot imagine what a relief that is - that was getting old, keeping an eye on that to make sure it didn't create another wound! Whew!

Thought you might enjoy some more photos of our confinment @ Swedish! Take Care!

Love,

Cyndi

P.S. Justin was absolutely the best nurse I had on the 4th Floor! He is one of those people that love their job and do it well! Celia still has a couple photos that I would like to share - but we'll do that later! Courtney was also a great nurse - she was very easygoing! Then of course once I was moved to the 6th Floor, (Monday) I got to see Saba! She always asks for Mark! I also had another excellent nurse on this floor that I had had before - Dave! He was on my "dream team" my first emboization - sorry didn't get a photo!

Posted by Dulce at 8:52 AM  

2 comments:

Anonymous said...

Dear Cyndi,
I am so glad that you got home in time for ThanksGiving! I know that you had a very rough time in Denver, but it is wonderful that it brought you so much closer to youre sister. They say that everything happens for a reason!

Connie
AVM Survivors Network

December 1, 2008 at 10:50 AM  
FABmom said...

Wow, Celia really came through for you! I'm so happy she was there with you through all of this. And I'm happy you got through all the chaos. Hopefully you can relax a bit during the Christmas holidays. I'm so proud of you my friend!!

December 3, 2008 at 3:38 PM  

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