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About me

Dulce
From the AVM SURVIVORS web site: "Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body". I am currently undergoing embolizations with Dr. Wayne Yakes @ the Swedish Medical Center in Englewood, CO every 8 weeks! Our lives are either planning a procedure, having a procedure or recovering from a procedure! The trick lately seems to be to keep the "bleeds" under control! My husband Mark is also my caregiver! He has become an expert wound care therapist, not to mention all around bundle of being just exactly what I need to get through the day and this ordeal we call an AVM! I recently finished 10 years of Embolizations w/Dr. Yakes and am finally ready for my next stage - Debulking and reconstructive surgery w/Dr. Robinson in CO - he is a dentist and plastic surgeon! Best advice to an avm patient - Stay positive and surround yourself with supportive people! Lots of faith, prayer and love are all crucial too!
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Check out these links!

  • Shalon's blog
  • Shalon's Website

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      • My Sister ... (Chapter 2)
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Cyndi's AVM journey

Check out my Pictures at the bottom of the page!

Here we go again!

Tuesday, November 11, 2008

Hi Folks! I can tell you now that this won't be a humorous blog, just a boring, factual one! Late Saturday night I had a bleed. Nothing major, because the surgicel stopped it. Enough though to get blood on my neck and around the neckline of my night shirt! Had a long day @ work on Monday - came home, got comfortable and in bed to get some rest! As usual, if I sit still too long, I'll fall asleep (due to so many meds that make me drowsy), so I woke up @ 745pm to the phone ringing. It was Mark and he was @ the grocery store wanting to know if I needed anything. He got home and I ended up watching TV in the living room, trying to catch up w/some shows on the dvr, and fell asleep! By this time, Mark was in the bedroom, and I woke up and felt that my neck was damp. I could feel the back of my hair was a little sticky, so I knew what that meant! I went to look in the bathroom mirror and sure enough - I could see on my wound dressing that I was having a bleed! UGH! I went to get Mark, we got the wound care bag and got the dressing taken off. Yup - a stream of blood was coming out! I was trying to put pressure on the area, but not before I got blood all over the front of my nightgown! Mark put some surgicel on the area that was bleeding and got it stopped! Got myself cleaned up and my nightgown soaking and Mark redressed the wound. Each day the area below my left eye is getting puffier too. If I can just get through the week, it's almost time for another procedure next week! I'm really hoping I won't have a bleed @ work or on the plane en route to Denver, like what happened during our last trip! This trip I will be accompanied by Celia! As always, all your prayers and well wishes are appreciated!

Cyndi

Posted by Dulce at 7:12 PM  

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