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About me

Dulce
From the AVM SURVIVORS web site: "Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body". I am currently undergoing embolizations with Dr. Wayne Yakes @ the Swedish Medical Center in Englewood, CO every 8 weeks! Our lives are either planning a procedure, having a procedure or recovering from a procedure! The trick lately seems to be to keep the "bleeds" under control! My husband Mark is also my caregiver! He has become an expert wound care therapist, not to mention all around bundle of being just exactly what I need to get through the day and this ordeal we call an AVM! I recently finished 10 years of Embolizations w/Dr. Yakes and am finally ready for my next stage - Debulking and reconstructive surgery w/Dr. Robinson in CO - he is a dentist and plastic surgeon! Best advice to an avm patient - Stay positive and surround yourself with supportive people! Lots of faith, prayer and love are all crucial too!
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Check out these links!

  • Shalon's blog
  • Shalon's Website

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      • Hi again!
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Cyndi's AVM journey

Check out my Pictures at the bottom of the page!

Late Sept. 2012

Tuesday, September 25, 2012

Hi Everyone!  How are you?  I've been doing well, considering the circumstances!  For me, as long as there is no spontaneous bleeding, I'm good!  Haven't had much of an appetite lately - probably all the meds I'm always on messes w/my stomach.  Poor Mark is always trying to prepare me something good to eat!
This will be a quick entry, as I want to spend as much time as I can with our furry kids before we leave on another trip to CO!  I always look forward to going, as I know I'm in the best care possible @ Swedish!  Plus, I love everyone up there - they are so awesome!  That is so important for a patient to feel safe, comfortable and well cared for!  It gives Mark a little bit of a break from having to take care of me all the time too!  I just found out last visit that Swedish has free WiFi - yay!
Shalon was recently in CO - she went for her 6 month check up and needed a little more embolization - the she'll return in another 6 months for another MRI to see if she is finally AVM free!


Our babies just celebrated a birthday!  Prince Hanz is now 4 and Princess Bella is 2!  For dinner, they got one of those Ceasars Gourmet Dinners in Filet mignon (the ones w/the white Westie on it)!  They are so funny and we love them so much!  Last time we took them to Petsmart, a little girl kept telling her dad, "I want to pet the blonde one"!  Hanz is always good about performing his tricks - dancing on his hind legs, sitting, laying down and giving Mark a left handed high five!  Bella used to lick everyone, but lately she's been acting shy around people!  Too cute!  Big sister Midori helped celebrate the occasion too w/her own party hat!
Recently, Celia took time out from her busy schedule to clean my teeth!  Most of you know she is a dental hygenist and her husband Greg a dentist!  My teeth are suffering as I go through my avm treatments - not too badly though.  I'll deal with it.

Oh!  I just finished reading a free nook book called All Roads lead to Austen - a Yearlong Journey with Jane by Amy Elizabeth Smith.  I remember seeing it @ the Safeway in CO and wanting to get it.  There were 2 free friday books this past week - one being Reader and Educator Guide to The Hobbit and Lord of the Rings.  I'm only on Chapter 2 of The Hobbit - I'm taking it w/me to CO so I cn read it this time!
If you ever have a chance, check out the Brussels Griffon Fan Page on Facebook - one of the breeders Brussels just had puppies!  So precious! Oh, that is Bella taking a nap!
Thank you all for your love, prayer and support.  The journey continues ...
Much love to all of you!




Cyndi, Mark, Hanz and Bella!

Posted by Dulce at 10:36 PM  

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