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About me

Dulce
From the AVM SURVIVORS web site: "Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body". I am currently undergoing embolizations with Dr. Wayne Yakes @ the Swedish Medical Center in Englewood, CO every 8 weeks! Our lives are either planning a procedure, having a procedure or recovering from a procedure! The trick lately seems to be to keep the "bleeds" under control! My husband Mark is also my caregiver! He has become an expert wound care therapist, not to mention all around bundle of being just exactly what I need to get through the day and this ordeal we call an AVM! I recently finished 10 years of Embolizations w/Dr. Yakes and am finally ready for my next stage - Debulking and reconstructive surgery w/Dr. Robinson in CO - he is a dentist and plastic surgeon! Best advice to an avm patient - Stay positive and surround yourself with supportive people! Lots of faith, prayer and love are all crucial too!
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Cyndi's AVM journey

Check out my Pictures at the bottom of the page!

Short lived luck

Sunday, January 29, 2012

Hi again folks! Well, guess what? Couple hours after I last wrote, I was talking to Mark when he noticed a trickle of blood coming down my chin. That turned into a full bleed and I really had to pack my mouth trying to stop the bleeding. Hard to tell exactly where it was coming from and certainly difficult to apply pressure. It had stopped @ one point, but I pulled the packing out too soon and it started bleeding again! UGH! I was so darned hungry too! Mark had made some Starbucks Christmas blend coffee that I was really wanting to drink! I had to be soooo cautious all day long. This is soooo disappointing! On the one hand, it ruined my entire day. Had to call Nurses on Wheels to come change my pic site dressing since I got blood on it. There is no telling whether this will happen again @ all anytime soon, or in an hour! I didn't get a chance to do much of anything today from just trying to take it easy after that bleed! Now, I'm going to be worried about this happening @ work tomorrow. I just felt w/as much alcohol as Dr. Yakes had used this past embolization, bleeding was the last thing I would have to worry about! This avm has a life of it's own. I'll keep you posted.
Cyndi

Posted by Dulce at 11:04 PM  

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