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About me

Dulce
From the AVM SURVIVORS web site: "Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body". I am currently undergoing embolizations with Dr. Wayne Yakes @ the Swedish Medical Center in Englewood, CO every 8 weeks! Our lives are either planning a procedure, having a procedure or recovering from a procedure! The trick lately seems to be to keep the "bleeds" under control! My husband Mark is also my caregiver! He has become an expert wound care therapist, not to mention all around bundle of being just exactly what I need to get through the day and this ordeal we call an AVM! I recently finished 10 years of Embolizations w/Dr. Yakes and am finally ready for my next stage - Debulking and reconstructive surgery w/Dr. Robinson in CO - he is a dentist and plastic surgeon! Best advice to an avm patient - Stay positive and surround yourself with supportive people! Lots of faith, prayer and love are all crucial too!
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Cyndi's AVM journey

Check out my Pictures at the bottom of the page!

Brussels Grandma!

Wednesday, March 23, 2011


Hey Y'all! How is everyone? I am doing pretty darned good! Shhhh.... don't say that too loud, right? I thank God every day that I haven't had an bleeding from my mouth, nose or wound area! Yay! I am taking extra meds like Iron, Potassium and even something my brother-in-laws Greg's youngest brother is involved with - a multi-vitamin pack called Life-Pack Nano! I've been off steroids for almost a week - I was on them for a long, long time, so I'm happy to be ok!


I just wanted to add something when I was talking about my great support system! Lately, Mark has been working late and worked all weekend, and I had been telling Mom that Hanz and Bella weren't getting their walk that Mark usually takes them on. I would love to take them myself, but since I had been so weak before and I really couldn't handle them on my own .... but Mom volunteered to help me walk Hanz and Bella! Wasn't that sweet of her? I didn't take her up on it, but I sure appreciated her thoughtfulness! Hanz gets really excited when we tell him we're going to Grandmas! Bella is too little to understand all the Grandma hub-bub, but she's always happy to see Mom! Mom even has a "Brussels Grandma" T-shirt! She takes that role seriously, and always asks about our furry kids and says to give them a big squeeze for her!

I had a little big of a rough night - was a little anxious and couldn't seem to get comfortable. Wasn't time for any meds, although I felt like taking something, but it was too close to the time to get up, so I didn't want to take something that would make it that much more difficult to get up when the alarm rang! Hanzie was right there with me - if I got up, he got up. If I went to the bathroom, he followed me over there. Such a sweetie! Bella slept through the whole thing, which is good. She and Mark don't need me taking their rest away! Speaking of, I'm heading to my evening nap! Mark is working a little late, but he'll probably get in with time to walk the kiddos. I need to check on Bella, her latest habit is running off with my rubber stamps! Mark moved a group of them from a lower shelf, but she found more that she could reach! She had the rubber stamp of a Brussels Griffon a bit ago! Yikes! Hanz didn't do that for long when he was little, so here's hoping we can break Bella of that habit!


My love to all of you!


Cyndi

Posted by Dulce at 6:23 PM  

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