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About me

Dulce
From the AVM SURVIVORS web site: "Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body". I am currently undergoing embolizations with Dr. Wayne Yakes @ the Swedish Medical Center in Englewood, CO every 8 weeks! Our lives are either planning a procedure, having a procedure or recovering from a procedure! The trick lately seems to be to keep the "bleeds" under control! My husband Mark is also my caregiver! He has become an expert wound care therapist, not to mention all around bundle of being just exactly what I need to get through the day and this ordeal we call an AVM! I recently finished 10 years of Embolizations w/Dr. Yakes and am finally ready for my next stage - Debulking and reconstructive surgery w/Dr. Robinson in CO - he is a dentist and plastic surgeon! Best advice to an avm patient - Stay positive and surround yourself with supportive people! Lots of faith, prayer and love are all crucial too!
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  • Shalon's blog
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Cyndi's AVM journey

Check out my Pictures at the bottom of the page!

So many adventures!

Wednesday, February 23, 2011

Greetings to all of my family and friends - how are you? Well, things are never boring around here! Right around Mom's birthay, Feb. 7th, I kept having some bleeding from inside my mouth as well as feeling it trickle down down the back of my throat and then out my nostril(s)! One morning about 5:00 a.m. - I sat up and knew I was about to have a bleed. Sure enough, I barely made it to the bathroom to get all of that under control! So after a few days of having a "bleed" once or twice a day, I had asked Celia what she thought about maybe my going back to CO for another procedure, even though I had just come back from having one Jan 19th - 21st! I just didn't know what to do @ this point - should I wait it out and the bleeding will stop on it's own, like it did after my last procedure? I was getting tired of the bleeding @ least twice a day for the last 7 days! I hadn't told Mom because I didn't want to worry her - but we decided I would go earlier than the appt. I had already scheduled for mid-March!

Well, the day arrived for the healing Mass @ Lantana, and turns out the Mass was @ Noon and not 5:30 or 6:00 p.m. like we thought! There was a rosary being finished to we participated in that - we had our Aunt, Sister. Juanita with us, The Fossums, along with our nephew Mark, my husband Mark, the Morins and Celia's friend Patty from choir! Everyone was leaving the chapel, when my brother-in-law Greg spotted a priest that apparently the Fossums and Morins had run into @ the airport on the way to S. Dakota! Greg explained the situation and the priest did the annointing of the sick with the holy oils for me! It was very special! Too be continued.....

Posted by Dulce at 5:11 PM  

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