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About me

Dulce
From the AVM SURVIVORS web site: "Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body". I am currently undergoing embolizations with Dr. Wayne Yakes @ the Swedish Medical Center in Englewood, CO every 8 weeks! Our lives are either planning a procedure, having a procedure or recovering from a procedure! The trick lately seems to be to keep the "bleeds" under control! My husband Mark is also my caregiver! He has become an expert wound care therapist, not to mention all around bundle of being just exactly what I need to get through the day and this ordeal we call an AVM! I recently finished 10 years of Embolizations w/Dr. Yakes and am finally ready for my next stage - Debulking and reconstructive surgery w/Dr. Robinson in CO - he is a dentist and plastic surgeon! Best advice to an avm patient - Stay positive and surround yourself with supportive people! Lots of faith, prayer and love are all crucial too!
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  • Shalon's blog
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Cyndi's AVM journey

Check out my Pictures at the bottom of the page!

Extra photos and comments!

Sunday, December 5, 2010







Good Morning everyone! Woke up to take pain pills and steroid and now I'm going to do what I tried to do last night before sleep necessity took over! I already wrote all the basic things that happened, and overlooked talking about one of the main people that is with me on this journey!

Mark is outstanding as a husband, friend, home health tech.! He totally understands me and what he needs to do to make these trips as comfortable as possible for me! We have been through this routine so many times, and with Mark @ the helm, I'm just following his direction! Mark always has my ticket/ID/Purse or whatever he needs to do that will make things easier for me!

Here are some extra photos from the trip - I just noticed that I had not posted any photos of Dr. Hepworth while we were in his office! Dr. Hepworth is the best! The one photo where I'm holding something black like sunglasses are for me to wear while Dr. Hepworth is looking in my right ear and up my nostrills! Yikes! I get to "see" through these glasses @ everything Dr. Hepworth is doing to me - weird!

Here is a photo Mark took of me @ the hotel - I am so tired I fell asleep sitting up and I wasn't feeling well w/an upset stomach!

Here I am on the way to surgery - Saba has been a part of my trips since I got her! We really had a good trip - just enough time to do what we needed to. Actually could have used another couple hours to shop maybe - but like I said, Mark humors me and tries to make this as pleasant as possible for me! Take care y'all! Thanks again!

Cyndi Schuman

Posted by Dulce at 7:38 AM  

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