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About me

Dulce
From the AVM SURVIVORS web site: "Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body". I am currently undergoing embolizations with Dr. Wayne Yakes @ the Swedish Medical Center in Englewood, CO every 8 weeks! Our lives are either planning a procedure, having a procedure or recovering from a procedure! The trick lately seems to be to keep the "bleeds" under control! My husband Mark is also my caregiver! He has become an expert wound care therapist, not to mention all around bundle of being just exactly what I need to get through the day and this ordeal we call an AVM! I recently finished 10 years of Embolizations w/Dr. Yakes and am finally ready for my next stage - Debulking and reconstructive surgery w/Dr. Robinson in CO - he is a dentist and plastic surgeon! Best advice to an avm patient - Stay positive and surround yourself with supportive people! Lots of faith, prayer and love are all crucial too!
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Cyndi's AVM journey

Check out my Pictures at the bottom of the page!

Just call me Puffy!

Wednesday, May 20, 2009




Hi again my Peeps! How is everyone? Good, I hope! Well, first I want to add a couple more photos from my birthday @ Celia's! The one photo is Mark having poured us all some Asti Spumante for a toast! Then of course he baked me my favorite Italian Cream Cake from scratch! It is sooo awesome! Mark says it would have looked better, but he made it and frosted it while it was still warm, because we were heading out to the island to The Fossums house! This was the first time he used (at my request) some of the "tools" from his cake decorating class and put a swirly trim on top and bottom. Unfortunately, the top swirly rim ended up @ the bottom I think because it didn't help that on the way, the cake kinda slid a bit to the side of the cake holder! Who cares what it looks like, it was delish!

Ok - back to business! Let's see .... I woke up @ 2:30 a.m Monday morning, sat up and felt my neck. I knew something was going on, so I turned the bedside lamp on and woke Mark up. I asked him if I was bleeding or it was just sweat. Nope, it was bleeding alright! Got some blood on the top sheet too - went to the bathroom and took the dressing off, but it had already stopped. Mark had put some surgicel on the area that he felt would be giving us problems and that was what kept that bleed from being worse!

So, both of us were falling asleep @ work Monday, what w/being up late w/the bleed! The next morning, Tuesday - I was getting tired of looking @ my puffy eye! Yeah, it started getting puffy on Saturday and kept getting worse! There went my fun in wearing mascara! So I had Mark take a photo and I sent it to both of Dr. Yakes P.A.'s (Rhonda is still there) and to the patient coordinator, Sadie, as well! Got a call from Eric and he asked me about it and how I was doing! Told him about the two recent bleeds and he asked if my eye was still puffy. Told him that photo had been taken a few hours earlier! See glamour shot! So, he agreed to send me a round of Prednisone (steroids) to bring the swelling down! Life with an avm - I woke up @ 4:30 because Hanz was in bed w/us and I thought he had to go to the bathroom. Well, I ended up just staying up and deciding to blog! When I talked to Eric, he sounded sleepy. I asked if it was because of the new baby and he said yes. Eric and his wife just welcomed a baby girl, Lindsey. I think Eric said 7 lbs. 12 oz.! Ok - gotta get a few minutes sleep before the alarm rings! Just had to show y'all my puffy eye!

Thanks again for being my buds and keeping me in your prayers! Have a great day!

Cyndi

Posted by Dulce at 5:53 AM  

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