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About me

Dulce
From the AVM SURVIVORS web site: "Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body". I am currently undergoing embolizations with Dr. Wayne Yakes @ the Swedish Medical Center in Englewood, CO every 8 weeks! Our lives are either planning a procedure, having a procedure or recovering from a procedure! The trick lately seems to be to keep the "bleeds" under control! My husband Mark is also my caregiver! He has become an expert wound care therapist, not to mention all around bundle of being just exactly what I need to get through the day and this ordeal we call an AVM! I recently finished 10 years of Embolizations w/Dr. Yakes and am finally ready for my next stage - Debulking and reconstructive surgery w/Dr. Robinson in CO - he is a dentist and plastic surgeon! Best advice to an avm patient - Stay positive and surround yourself with supportive people! Lots of faith, prayer and love are all crucial too!
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Check out these links!

  • Shalon's blog
  • Shalon's Website

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      • Updated for my BFF Wendy P.!
      • Monday Hyperbaric Appt.
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Cyndi's AVM journey

Check out my Pictures at the bottom of the page!

Monday Hyperbaric Appt.

Monday, January 19, 2009


Hi Everyone!

Well, woke up this morning feeling nauseous! Don't know if it was "nerves" thinking about the Hyperbaric Oxygen Treatment, or just the way I slept on my pillows! If those pillows are not stacked right, and my head is too far forward, that causes me some strain and I get to feeling nauseous! In any case, I had to get my act together quick, because we were due to report to Spohn Hospital by 8am! Finally found the Wound Care area, and checked in. Dr. Larkin came in to see me and she met Mark for the first time. Right away, Dr. Larkin said we could not do the hyperbaric w/out having the CT Scan already done - fine by me. Anything that will prolong my getting into that darned tube works for me! So, after taking a look at my "wound area" on my face - Dr. Larkin decided to debried it herself and felt like we should go after that area a little more aggressively. It's such a fine line between keeping it "moist", but not TOO moist - and keeping it dry, but not too dry! So, for the next 2 to 3 weeks, I'll see Dr. Larkin @ Spohn Hospital for Wound Care Therapy, and sloughing off some of that scabbing will allow that area to heal better! We're going to try that before doing any hyperbaric treatment @ all!

And ... just because our puppy is just so darned cute ... here is another picture of Hanz we took yesterday!

I'll fill you in on how the CT Scan goes this afteroon, so check back, ok?

Love to all!

Cyndi

Oh! I almost forgot to mention - that I had been in to see Dr. Larkin once before and had give her Shalons web site address. Dr. Larkin did mention that she was keeping up with it and really liked it! Isn't that nice that these doctors support AVMers?!

Posted by Dulce at 10:59 AM  

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