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About me

Dulce
From the AVM SURVIVORS web site: "Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body". I am currently undergoing embolizations with Dr. Wayne Yakes @ the Swedish Medical Center in Englewood, CO every 8 weeks! Our lives are either planning a procedure, having a procedure or recovering from a procedure! The trick lately seems to be to keep the "bleeds" under control! My husband Mark is also my caregiver! He has become an expert wound care therapist, not to mention all around bundle of being just exactly what I need to get through the day and this ordeal we call an AVM! I recently finished 10 years of Embolizations w/Dr. Yakes and am finally ready for my next stage - Debulking and reconstructive surgery w/Dr. Robinson in CO - he is a dentist and plastic surgeon! Best advice to an avm patient - Stay positive and surround yourself with supportive people! Lots of faith, prayer and love are all crucial too!
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Check out these links!

  • Shalon's blog
  • Shalon's Website

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      • My Prince, My Partner, My Dream!
      • Final Chaper of ... My Sister, my friend
      • Hospitalized yet again!
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Cyndi's AVM journey

Check out my Pictures at the bottom of the page!

Final Chaper of ... My Sister, my friend

Saturday, December 20, 2008



Hi Everyone!

I am finally getting around to finishing the final "chapter" of my last embolization trip to Denver in November! That was the trip Celia went w/me on and it turned out to be a week hospital stay instead of the usual over night! I've come to learn that 95% of Dr. Yakes patients get sent home the same day as their embolization - but since my avm is facial and extensive, it's best that I'm kept overnight! That week in the hospital took a lot of my time I might have been holiday shopping! To boot, I ended up having to go back into the hospital those 4 days here locally, so there went more time I could have been shopping or enjoying the holiday season! Darn! Oh well.
Here is the photo we've all been waiting for! The sister photo! My sister Celia had been trying to "edit" the photo, as she thought it was too dark.

Also, I want to include a photo of my two bears, Saba and Rulon! Saba goes with me to work every day and to all my doctors appt.s! I get so many comments on them both, so they are a nice distraction from my avm! I have fun dressing them differently - they make me happy, so I enjoy having them around!

Oh! I want to send a "shout out" to Dr. Zane, my ENT here locally! He is very supportive of avmers - I had given him Shalon's web site address once and he looked it up and had liked her site! I recently had an appt. to see him and know he was going to try and check my blog out!

Well, I am heading out to my next embolization Jan. 6,7 & 8th - and this time Mark will be coming with me! With any luck, we'll have a few minutes to spend with Shalon and her husband Josh while we are up there!

We hope everyone is having a great holiday season! I will certainly try to blog again sooner this time - as Marks birthday is New Years Eve! Catch up w/all of you soon!

Love,

Mark & Cyndi

Posted by Dulce at 10:37 PM  

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