skip to main | skip to sidebar

About me

Dulce
From the AVM SURVIVORS web site: "Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body". I am currently undergoing embolizations with Dr. Wayne Yakes @ the Swedish Medical Center in Englewood, CO every 8 weeks! Our lives are either planning a procedure, having a procedure or recovering from a procedure! The trick lately seems to be to keep the "bleeds" under control! My husband Mark is also my caregiver! He has become an expert wound care therapist, not to mention all around bundle of being just exactly what I need to get through the day and this ordeal we call an AVM! I recently finished 10 years of Embolizations w/Dr. Yakes and am finally ready for my next stage - Debulking and reconstructive surgery w/Dr. Robinson in CO - he is a dentist and plastic surgeon! Best advice to an avm patient - Stay positive and surround yourself with supportive people! Lots of faith, prayer and love are all crucial too!
View my complete profile

Check out these links!

  • Shalon's blog
  • Shalon's Website

Archivo del blog

  • ► 2014 (3)
    • ► July (1)
    • ► May (1)
    • ► January (1)
  • ► 2013 (12)
    • ► December (1)
    • ► November (1)
    • ► October (1)
    • ► July (3)
    • ► June (2)
    • ► April (1)
    • ► February (2)
    • ► January (1)
  • ► 2012 (24)
    • ► December (2)
    • ► November (2)
    • ► October (2)
    • ► September (3)
    • ► August (4)
    • ► June (2)
    • ► May (2)
    • ► April (2)
    • ► March (1)
    • ► February (1)
    • ► January (3)
  • ► 2011 (24)
    • ► December (1)
    • ► November (1)
    • ► October (2)
    • ► September (1)
    • ► August (1)
    • ► June (2)
    • ► May (1)
    • ► March (4)
    • ► February (5)
    • ► January (6)
  • ► 2010 (30)
    • ► December (3)
    • ► October (1)
    • ► September (3)
    • ► August (7)
    • ► July (2)
    • ► June (3)
    • ► May (4)
    • ► April (1)
    • ► March (3)
    • ► February (1)
    • ► January (2)
  • ► 2009 (47)
    • ► December (6)
    • ► November (1)
    • ► October (4)
    • ► September (2)
    • ► July (5)
    • ► June (2)
    • ► May (3)
    • ► April (5)
    • ► March (6)
    • ► February (7)
    • ► January (6)
  • ▼ 2008 (27)
    • ► December (3)
    • ► November (4)
    • ▼ October (6)
      • Trick or Treat!
      • Are you kidding me?
      • I Get By With A Little Help From My Friends!
      • False Alarm!
      • Promising News
      • Celebrating!
    • ► September (7)
    • ► August (7)

Cyndi's AVM journey

Check out my Pictures at the bottom of the page!

Celebrating!

Thursday, October 2, 2008




Hi Everyone!

This will definitely be a happier blog than last time! The dark side of the avm has passed for now ... the steroids took effect, and as you can see from the photos, no more puffiness under my left eye! We all went out to celebrate Marks 21st birthday @ Red Lobster on Sunday! Had fun visiting with Mark and we all went to Mom and Vicente house later to play one of our favorite games - Mexican Train! I finally learned how to play and we all enjoyed having some ice cream and just visiting w/each other! We had so much fun - all this helps give me strength, knowing our family bond is so great! Vicente is always so welcoming and supportive!

I've been doing fairly well - avm wise. Had a very minor bleed here and there, and the main thing has been keeping the pain under control! Guess what time it is too? Time for us to head out to CO! We will leave on Monday and return home Thursday in the early afternoon!

We still have some loose ends to wrap up before the trip - looking forward to going and getting this darned avm stabilized some more! I want the wound area to heal already! Speaking of "wounds" - I'm thinking Saba may be having a little procedure of her own! I think she needs to be "fluffed and stuffed" a little bit - her left arm tends to hang a little looser than her right! I will call the Build a Bear place(s) in CO to see who can get her worked on when we arrive on Monday! Saba must be in her best condition - she gets compliments wherever she goes! I couldn't shake this one little girl on Monday while I was @ Wal-mart! She told me how pretty Saba was and then she had to round up her whole family to point Saba out to them! What can I say, Saba takes after me! Ha, ha, ha! Ok, I'm bobble heading over here, so I need to wrap this up!

Thanks to all who come by for a visit - we'll update this on our return from CO!

Mark & Cyndi

P.S. I must also point out that even though these trips are considered "medical", it's sooo nice to get out of Corpus Christi! Mark has been working overtime lately and of course besides his regular day job, he has the full time job of taking care of me! He's an excellent wound care therapist and especially an all around support for me! This past week we lost a dear choir friend, Smitty Leonard. He and his wife Mary Ella served 18 years in choir and Mary Ella plans to continue her choir ministry. While @ the Rosary, the people in the pew in front of us turned to tell Mark what a beautiful voice he has. Mark replied by telling them he served 21 years in choir, but that @ the moment, taking care of his wife is his ministry! Is he a Godsend or what? Couldn't do this whole AVM thing without all of you out there too! Don't ever doubt what a big part all of you play in my AVM Journey!

Posted by Dulce at 6:31 PM  

2 comments:

ShalonAVM said...

Hey lady!!! Looking good! Seriously, the reduction is swelling and the overall appearance is great. I'm so excited for you and continue to hope that the wound heals up!

xoxo
Shalon

October 4, 2008 at 10:23 AM  
Christina said...

Hi Cyndi and Mark,

I hope your trip goes great. I'm trying to arrange a trip for Paige to be seen at Cincinnati Children's. We will have to go in the winter which will be a huge shock for us Arizonans. Michael leaves for Iraq on the 11th so we are very busy with all the details. It is his 4th time so we know the drill. The girls are pestering me with their Halloween costume concerns and changes. Paige is going to be a cloud (her own idea) and Bevin is deciding between a mouse and a mermaid. I'll have to forward photos later. I'm still playing with the "rain" that falls from Paige's sleeves. We are having company for dinner so I better whip up something good. We send our love to all and love reading your updates. Take care and have a safe and successful trip. Love, Tina

October 4, 2008 at 6:29 PM  

Post a Comment

Newer Post Older Post Home
Subscribe to: Post Comments (Atom)

Timeline Pics

Blog Design by Gisele Jaquenod