skip to main | skip to sidebar

About me

Dulce
From the AVM SURVIVORS web site: "Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body". I am currently undergoing embolizations with Dr. Wayne Yakes @ the Swedish Medical Center in Englewood, CO every 8 weeks! Our lives are either planning a procedure, having a procedure or recovering from a procedure! The trick lately seems to be to keep the "bleeds" under control! My husband Mark is also my caregiver! He has become an expert wound care therapist, not to mention all around bundle of being just exactly what I need to get through the day and this ordeal we call an AVM! I recently finished 10 years of Embolizations w/Dr. Yakes and am finally ready for my next stage - Debulking and reconstructive surgery w/Dr. Robinson in CO - he is a dentist and plastic surgeon! Best advice to an avm patient - Stay positive and surround yourself with supportive people! Lots of faith, prayer and love are all crucial too!
View my complete profile

Check out these links!

  • Shalon's blog
  • Shalon's Website

Archivo del blog

  • ► 2014 (3)
    • ► July (1)
    • ► May (1)
    • ► January (1)
  • ► 2013 (12)
    • ► December (1)
    • ► November (1)
    • ► October (1)
    • ► July (3)
    • ► June (2)
    • ► April (1)
    • ► February (2)
    • ► January (1)
  • ► 2012 (24)
    • ► December (2)
    • ► November (2)
    • ► October (2)
    • ► September (3)
    • ► August (4)
    • ► June (2)
    • ► May (2)
    • ► April (2)
    • ► March (1)
    • ► February (1)
    • ► January (3)
  • ► 2011 (24)
    • ► December (1)
    • ► November (1)
    • ► October (2)
    • ► September (1)
    • ► August (1)
    • ► June (2)
    • ► May (1)
    • ► March (4)
    • ► February (5)
    • ► January (6)
  • ► 2010 (30)
    • ► December (3)
    • ► October (1)
    • ► September (3)
    • ► August (7)
    • ► July (2)
    • ► June (3)
    • ► May (4)
    • ► April (1)
    • ► March (3)
    • ► February (1)
    • ► January (2)
  • ► 2009 (47)
    • ► December (6)
    • ► November (1)
    • ► October (4)
    • ► September (2)
    • ► July (5)
    • ► June (2)
    • ► May (3)
    • ► April (5)
    • ► March (6)
    • ► February (7)
    • ► January (6)
  • ▼ 2008 (27)
    • ► December (3)
    • ► November (4)
    • ► October (6)
    • ▼ September (7)
      • The Dark Side of an AVM!
      • Wound photos
      • Take a Hike Ike!
      • Oh no! Not again!
      • Swedish Staff - Second Family!
      • Another Bleed!
      • Happy Birthday Greg!
    • ► August (7)

Cyndi's AVM journey

Check out my Pictures at the bottom of the page!

Take a Hike Ike!

Tuesday, September 16, 2008






Hi Everyone!

Wow! It seems like forever since I last blogged! I already heard about that from Shalon! She e-mailed me telling me I was MIA after the storm and I hadn't blogged either! So, even though I should iron my clothes for tomorrow ... or I would love to be in bed reading ... I love blogging even more!

Last week our family was discussing the possibility that Ike may be heading toward Corpus Christi! Mark works for the City of Corpus Christi, so he has to stay, no matter what! Mom wanted to evacuate, as did the Fossums of course because they live out on the island! Meanwhile, Davis and his roommate James evacuated Galveston probably Thursday of last week! As did my friend Dorinda from Pasadena (or as she calls it, "Stink-a-dina")! I work @ the courthouse and had told my supervisor that my family wanted to evacuate, so I put in a leave form to take Thursday off! We had heard that our office may be closed Thur./Friday - but no ... when it was all said and done, our office closed @ noon Thursday and all of Friday! Luckily (for us) Ike didn't come our way, so I had Thur., Fri., Sat. and Sunday off!

I finished my book Eclipse, and am already on page 300 or so of Breaking Dawn (see photo)! Mark calls me bobble-head, because I can't put the book down and I get so sleepy due to the meds, and my head just bobbles and I drop the book occasionally, but I don't want to stop reading it! Mark tried to slowly move the book from my hands, as I had fallen asleep w/it, but it woke me up! Had to read a bit more!

I hadn't really had much to blog about - but I know I had mentioned that Saba had a playdate weekend w/Ryan the monkey! Ryan belongs to a co-worker, Grace that will be getting married later this week! Now, Saba has a sister named Lucia! She is the Build a Bear my sister Celia made in CO - but then kinda just left Lucia behind @ Grandmas. I thought Lucia might enjoy living in our home w/another bear! Lucia was named after Josh Groban's violinist! Anyway - see photos of the furry kids! I take Saba w/me to work - she's my therapy bear and makes me feel good to have her around!

I've been doing so great w/no bleeds! Until .... yesterday, while @ work, I was feeling around my left ear area and some of the scab came off! (Spock isn't the only one w/weird ears - @ least my left one is)! Of course I soon saw that blood was also coming along - luckily I caught it before it even touched my polo shirt! My co-worker/friend Diana came to help me put some surgicel on the area since I couldn't see that myself too well!

Three weeks until we go to Colorado again! I always look forward to going on these trips - it means I'm one step closer to being done w/my embolizations! The other day one of the defendants that came in had a bandage over her throat area, so I was asking her about having a trache, since there is a possibility that I'll have to have one. She immediately said it was very manageable and not @ all a problem! Good to know!

Today during my work hours, I took the department deposit to the Tax Assessors Office and I hadn't been there in a while, so I was looking forward to saying hello to all the ladies who work in the area! They are all so friendly - so I'm sending a shout out to the bookkeepers @ the Tax Assessors that inquire after my health and issues! Let's congratulate Kathy who just got married in Vegas! Her new husbands name is Mark! Thanks ladies - you are part of my avm journey by keeping me in your prayers and always smiling @ me - making me feel normal!

Ok - lets hope all will remain in order w/out too many incidents/issues before I head back to see Dr. Yakes and the gang @ Swedish! Please keep my new friend Marijn from Holland in your prayers! He has an avm on his side and has been having bleeds, so he is hospitalized @ the moment! Marijn will be having surgery soon to remove the rest of his avm! Yikes!

We also pray for all the people that live in or near Galveston! Davis (see photo)(he is soooo handsome!) will have to finish his first semester @ College Station, since his college in Galveston will not be ready after all the damage from hurricane Ike!

Love to all!

Cyndi

Posted by Dulce at 11:44 PM  

0 comments:

Post a Comment

Newer Post Older Post Home
Subscribe to: Post Comments (Atom)

Timeline Pics

Blog Design by Gisele Jaquenod