Mouth bleeds!

Hi Family and Friends!

How is everyone? Wish I were doing better - a few nights ago I woke up because I was starting to bleed inside my mouth! Got up, took the trache tube from my neck, stopped the humidifier, put the stopper plug thing on my trache and headed to the bathroom! When this happens, I get clots in my mouth that I end up gagging on and my nose starts getting runny and I'm trying to spit those clots in a tissue and throw them in the trash and all the while the blood is flowing! Had another one last night when we got home from my sisters, it wasn't too bad - but woke up early this morning having another! This one was bad. Mark was already dressed to go to Mass and I felt I should stay home - but I told Mark he should probably stay home as well. I was bleeding a lot and didn't want to faint and be home alone with the pups! I'm just sharing this with you since I've said having an avm is hell - this is part of it! The bad thing is, I can't open my mouth up very wide, so it's hard to see exactly where the bleeding is coming from! I may have to end up taking an emergency trip to CO to get this taken care of! I actually have an appt. in 11 days, but don't know if I can wait this long if this keeps happening! Meanwhile, my sister Celia was to go w/me on this next trip and she's only been home a week from Italy and was sick most of the time she was there, so she may not be up for a trip so soon!
For now, I just threw in a load of wash and after breakfast and a nap, I'll tke a shower and throw in another load of wash! Here's hoping there won't be any more bleeds! I just wanted to enjoy my weekend with Hanz and Bella! I'll keep you updated!

Cyndi

Hi again! I wanted to add more to this blog entry! While there is such horror with this avm - I also wanted to point out the good things going on around me! My wonderful husband is still with me through all the bleeds, waking him up @ all hours and not being able to keep up w/my chores! My children are loving and adorable! Funny, always chasing each other and making us laugh! My favorite thing is all 4 of us in bed together enjoying each others company! Most times Mark is watching TV, and I'm reading and we both take turns playing with Hanz and Bella or giving them tummy rubs! Bella is getting a little better w/the potty training, but needs a little more work.
Celia brought me a beautiful Gucci purse from Italy! More importantly though, she took a photo of Shalon and I with her as they visited the tomb of Pope John Paul II! That's all that I had asked her for on this trip, since I have had the good fortune to visit Italy, I didn't know what I could request for her to bring. I was very touched that she said the photograph she took was one of Shalon (fellow avm-er) and I together! The entire Fossum family does so much for us in helping with my avm problem - my family and friends are extremely supportive and that is what helps me get through when I'm going through the "hell" part of the avm. Thanks to all!