Hi Family and Friends!
Celia and I recently got back from what may be my final embolization to treat this avm! What? That's what we said! Let me go back a little ways. I had been having a few bleeds here and there a few days before this trip to CO. So discouraging feeling like the bleeding will never end! Actually, I had a bleed as I brushed my teeth before leaving for the airport! The whole trip I would have a trickle of blood now and then, so I was always looking in the mirror and needing to have a tissue to dab my lip/mouth area! I kept worrying that I would have a big bleed while I was on the plane and would need to rush to the teeny, tiny bathroom and get blood all over eveything! Thankfully that did not happen!
Poor Celia had just gotten back from traveling for a dental conference and had a 2 day break before repacking and heading out with me! I am so grateful she makes time for me out of her busy life with her husband Greg and 2 kids Mark and Davis - not to mention all her wife, Mom duties, running a household, working with Greg @ the office covering for other dental hygenists and her hobbies (choir ministry) and pets! I was not looking forward to the cold weather in CO since it had been pretty nice and warm in South Texas! If the weather gets below 40 degrees, we don't like to leave the house! It wasn't too cold when we arrived, but by Thursday, I watched the big, fat snowflakes falling most of the day as I looked out the hospital window!
I had really tried keeping up with taking all the necessary meds to make sure my iron, potassium, calcium levels and electrolytes were @ a level where I would be able to have my procedure! It's kind of hard to do when I was having frequent bleeds and was more concerned with that and having to take meds to control the pain from the pseudomonas infection I had for a couple of months! I supplement my "diet" with Clear Ensure - I love the regular Ensure, but since it is a "milk product" that causes phlegm and I can't be hacking and causing possible bleed from the force of the hacking! I would drink Pedealite once in a while too - many times when I was having bleeds and my mouth was packed, I wasn't able to eat normally, so these supplements were necessary to maintain my health! Oh, and for any avm-ers out there - if you are taking strong antibiotics/steroids for a lengthly period of time, don't forget that may cause Thrush and that is extremely painful! I sure learned that the hard way! Now I make sure and take prescription Clortrimazol several times a day if I am on IV antibiotics or steroids! Having Thrush means its very painful to swallow - having to eat things like mashed potatos and oatmeal.
One of the first things I would end up having to wear while I was in the hospital, was these leg monitors! Support hose and then these massagers to make sure I was getting circulation! I don't like wearing them and have to be unplugged when I get up to go to the bathroom. Oh well.
Here I am passing the time reading my Nook! I love having that and it's so convenient w/all the traveling I've done to CO! I had a small fleece blanket that has a photo of a puppy on it that Vicente gave me. I remember the first time I used it, Hanz pulled it off of me! Guess he thought it was his! Somewhere I have a cute photo of Hanz laying with this blanket and a cute yellow duck that Mom gave him his first Easter season with us!
Here is a photo of me with Victoria that is from Ethiopia I believe, and works in Housekeeping @ Swedish! She has always been so friendly and encouraging to us regarding my situation! Victoria has told Celia she has seen avm patients in worse condition than myself heal completely, so she would assure us I would be fine! When we gave her the good news that I was "done" w/my embolizations, she fell to her knees and started crying! She has always prayed for me and always asks for Mom, Celia or Mark (depending on whose with me)!
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