Wednesday, March 23, 2011
Posted by Dulce at 6:23 PM
Wednesday, March 16, 2011
Posted by Dulce at 6:13 PM
Saturday, March 5, 2011
Well, I have finally reached the point of having to make some changes in my life regarding how I take care of myself! I need to listen to my body and not my mind! I've been rebeling and in denial by not working with the Therabite. Well it got to where I can barely get my mouth open to put food in it (I know, I know ....) because I wasn't working with the Therabite - so I don't have a choice! Unfortunately, since I have a little paralysis on the left side, it's a little tricky to get it going, but it has already helped in just 2 days! Plus, I was always staying up as late as possible because I was enjoying what I was reading so much, but no more! When I drop the Nook or magazine, and my eyes start drooping - stop! I was trying to lead as normal a life as possible, but there is just no way with the horrid avm. I've had to take a step back and say it's ok to put the book down @ 10:30 p.m., instead of 1:00 a.m. I've been @ war with myself, refusing to give in to the fact that I can no longer function in a normal way! I don't know what I was thinking putting myself through staying up so late and not getting the rest I need in order to heal! I realized as well, that after that bleeding incident @ the restaurant, I was very "weak". I was b-a-r-e-l-y getting by as far as my work day. I recently told Celia about how I was feeling and she was the one that came up with the word "weak" - I had not even thought about it, but that is exactly the word I needed. Remember that poster of the kitten holding on to the knot @ the end of the rope? That was/is me!
First, a great day for me is no bleeding. Ahhhh, that is a fantastic day for me! Actually, I am having a slight problem related to that. I don't know whether it is fear that I may bleed, or psychosomatic (sp?) that I read in the hospital discharge papers that the patient may have a hard time breathing due to a possible blood clot in the lung? Every once in a while, I feel out of breath and I stop and take a deep breath and relax a few minutes. It's like I forget to breathe - I have to stop and tell myself to take in a deep breath.
Ok, so I get home after dealing with my work day, greet my babies that are super excited that Mommy is home .... get in my jammies and relax! Mark is usually home right before I am, so he gets out of his uniform, puts on some shorts and gets the kiddos ready for a good walk! While I'm napping, the kids are on their walk with Mark and he later comes in and starts getting our dinner ready. After dinner & watching TV, we try and get our things ready for the following day. I start getting sleepy and now I'm ready for bed right then! I used to ignore how I felt, thinking I could stay up (and would) until 1 or 2:00 a.m.! What was I thinking? Yikes!! I now go to sleep @ 10:00 or so and sometimes wake up @ 2:00 a.m. I'll read a few minutes and go back to sleep and maybe wake up @ 5:00 a.m. I'll read again a few minutes and drop back off to sleep until the alarm goes off @ 6:45 a.m. I am listening to what my body wants to do, due to medication or whatever.
I was due for a haircut a couple weeks ago, and told my hairdresser I needed something quick and easy! Nothing is going to make my avm look better and the least amount of time I spend in the shower the better! So now I have a cute, short cut that makes my life easier!
You know, a couple of my co-workers tell me they can't get over how cheerful I am, considering what I'm going through. I'm always in a good mood and trying to enjoy the day. One co-worker said I was remarkable. Well, I'd like to think that avm or not, I am a pretty happy person! None of that happened overnight of course, and it's not so much that I'm remarkable, but I surround myself with fantastic people! My support group is phenomenal! I've got prayers that give me the strength to endure my situation. From my amazing husband that tolerates me, cares for me, makes sure I have all my equipment/medical supplies. Our entire family contributes not only monetarily, but emotionally, and spiritiually! Having their support - and this means friends too! - enables me to carry on with my day! My friends always make sure I know they care - just by being in their thoughts and prayer and I get surprises sometimes like a cheery card/e-mail, or Starbucks gift card! All these things put a smile on my face and make this "hell" I'm going through a little easier! I must say that I never envisioned my sister Celia stepping up the way she has. She truly knows the meaning of being a good Christian and showing her love in so many ways. Celia is always busy taking care of something/someone, either helping her husband Greg with their business, doing something for the boys, or choir and friends. She still makes herself accessible to me/us whenever we have needed her. It is a huge help when she goes w/me on the trips to CO - but she gives something she has little of and that is time! Celia has found time to make sure I'm ok. Not only assuring me with words, but taking me to appts., picking me up after having a bleed, staying an extra Mass so that she can join us - just overall being there, giving up her time to help me! So, with everyones help, I can have some happy moments, knowing that I'm not alone while we wait for this avm to be overwith! I'll be seeing Dr Yakes again during the first week of May - yeah, I'll be spending my 50th birthday with my second family @ Swedish Medical Center!
Thanks again everyone for all your love and support! All of you together help me function in as close to "normal" way as possible! I still have so much to do - a lot of correspondense to catch up with! Take Care!
Posted by Dulce at 7:22 PM
Good Morning everyone! Thanks for checking in - I really enjoy writing and keeping all of you up on the latest! Some time this weekend, I want to post a photo of me w/my babies! We'll see if I can accomplish that!
I was so happy to have made it through the entire work day Thursday w/no bleeds - yay! Got home, and started having pain in my left knee. I've been diagnosed w/a torn miniscus but have put off taking care of that for obvious reasons. I've neglected too many other things my body needs to have done due to this darned avm! I remember on my wedding day, trying to shift my weight off my left knee during Mass, since the pain was a little distracting. I would periodically have these pains, but being on such great pain meds, I was able to dismiss getting anything done. Well, actually about a year ago, I got as far as getting a cortizone shot and an MRI and an ortho appt., but just didn't schedule the surgery! Unfortunately dropped the ball on all that, probably due to some avm emergency. Back to Thursday night - went to bed and by 4:30 a.m., was in so much pain on my left knee, that Mark wanted to take me to the ER. Told him no way, I would wait a few hours for my PCP to open than to sit in the ER - this way @ least I could be somewhat comfortable in my bed!
Took another pain med. that let me sleep the next few hours! Called in to work, got in to see my PCP, got a cortizone shot and an appt. for an MRI @ 2pm. Arrived for the MRI, had asked whether I'd be stuck in the tube due to my claustrophobia. Really, from the neck up, I was outside the tube. I did run into some problems though - of course! Since we arrived early for the MRI appt. to fill out paper work, read magazines in the lobby until my turn, etc. Well, problem #1 was having to lay flat on my back - where I "normally" sleep almost sitting up. Plus, I should have checked the time on my pain meds - I was almost 2 hours late in taking that - causing me alot of anxiety! Since I was not propped up in a sitting position, my sinus's were draining to the back of my throat and I was going into withdrawls from wanting the narcotic in my system for pain. I called out for help but of course no one heard me! I had already been praying alot and just could not take it anymore! Finally was heard and the tech didn't want to let me out of the tube, saying he only had a few more minutes to go! Yikes! My mouth was so dry, I was pulling my hair out and going crazy! Was so happy to finally get out of there and get my situation under control! Whew! Went home to rest in bed - propped up - after having a snack. My knee was finally tolerable between my pain meds, the steroids I'm still on and the cortizone shot!
Woke up and didn't find Mark - thought he went to the grocery store, so called him on his cell. He was outside talking to our neighbor, and another neighbor had stopped by to talk and asked how I was. After Mark told her what we had been going through, she came back and handed Mark a plate full of home made tacos for our dinner! OMG! This was the perfect, neighborly, Christian thing she could have ever done! What a blessing! Gave Mark a break in having to cook and they were delicious!!! I told Mark that when ever I was well again, I wanted to really make concious decisions like that in always going the extra mile to help someone in need! Had our tacos as we relaxed and watched tv. Got read for bed and I realized Bella threw up! Had to remove the bedspread, thought she was ok, but nope! Threw up again - there goes the top sheet! Poor baby girl! Mark gave her a little "mylanta" that we had gotten from the Vet last time Hanz needed it. Bella still threw up a little more - but seems ok now. I stayed up until 2:00 a.m. trying to relax and to kinda watch Bella - but all seems well this Saturday morning. I'm going back to bed - just wanted to let you in on the latest! Take Care!
Got a disc of photos from the MRI - waiting for the Ortho appt. and will set up surgery for torn miniscus. Not letting this go this time - having to follow it through and will have to take care of it between CO trips and all!
Posted by Dulce at 7:40 AM