Sunday, February 27, 2011
Posted by Dulce at 10:35 AM
Friday, February 25, 2011
Posted by Dulce at 9:38 AM
I get all hooked up to IV's Respiratory mists - and the resp. tech was able to give us some collars and a few other supplies we needed! Everyone @ Swedish is so nice and caring! Dr. Yakes and his two P.A.'s are fabulous, the nurses, even though they don't always get that IV on the first try - OUCH!
Posted by Dulce at 9:26 AM
Wednesday, February 23, 2011
Greetings to all of my family and friends - how are you? Well, things are never boring around here! Right around Mom's birthay, Feb. 7th, I kept having some bleeding from inside my mouth as well as feeling it trickle down down the back of my throat and then out my nostril(s)! One morning about 5:00 a.m. - I sat up and knew I was about to have a bleed. Sure enough, I barely made it to the bathroom to get all of that under control! So after a few days of having a "bleed" once or twice a day, I had asked Celia what she thought about maybe my going back to CO for another procedure, even though I had just come back from having one Jan 19th - 21st! I just didn't know what to do @ this point - should I wait it out and the bleeding will stop on it's own, like it did after my last procedure? I was getting tired of the bleeding @ least twice a day for the last 7 days! I hadn't told Mom because I didn't want to worry her - but we decided I would go earlier than the appt. I had already scheduled for mid-March!
Well, the day arrived for the healing Mass @ Lantana, and turns out the Mass was @ Noon and not 5:30 or 6:00 p.m. like we thought! There was a rosary being finished to we participated in that - we had our Aunt, Sister. Juanita with us, The Fossums, along with our nephew Mark, my husband Mark, the Morins and Celia's friend Patty from choir! Everyone was leaving the chapel, when my brother-in-law Greg spotted a priest that apparently the Fossums and Morins had run into @ the airport on the way to S. Dakota! Greg explained the situation and the priest did the annointing of the sick with the holy oils for me! It was very special! Too be continued.....
Posted by Dulce at 5:11 PM
Sunday, February 6, 2011
Hi! How is everyone doing? Well, we recently survived our "frozen weekend" here in Corpus Christi, Texas! I was just telling Mom how nothing even "happened" after all the News about our weather, and she says, "what do you mean"? Apparently, since her place has trees right close to the house, she said it sounded like it was hailing all night for them! The trees we have don't touch the house really, so over here @ our place, I felt like I just looked out and saw frost on the lawn and cars! We stayed in for 2 days enjoying our furry kids!
I just wanted to add a thing or two of what my daily experiences are having to deal with an avm. Not that I want to sound like all I do is complain, but I do want to tell y'all what I DO go through, and how not necessarily All avm patients experience the same things - each individual has their own circumstances to deal with! You may have heard me mention a fellow avm-er that has her avm in her upper pallet of her mouth and I know she bleeds alot and probably deals with much more than I do! Not to diminish anyone else's situation, but I don't think my avm is as bad as it could be, but certainly worse than others. What made me think of this, was that yesterday (or was it earlier today, all my days run into each other!?) I just did not have the right balance of medication going and was not a happy camper! About 7:00 a.m. I'm trying to remember if my main pain killer, (oxycontin) made it into my mouth @3:30 a.m. I do remember trying to write it down and how I can barely tell what I wrote since I was more asleep than awake! I also remember spilling the entire contents of that bottle on top of me, so I was trying to make sure I gathered each pill - heaven forbid one of my babies eat one! I later found two pills, thinking I had put them all in the bottle! Well, it was 2 hours until time to take my next dose of that pain pill, but I'm starting to feel anxious and am exhausted, but not relaxed enough to close my eyes and sleep! In my mind I kept thinking, "I'm never going to feel well, I'm never going to feel well ..."! I finally told Mark I was taking my pain pill dose early by 2 hours, took my steroid for the swelling and fell asleep with a lifesaver in my mouth - my pain pills dry my mouth out so bad! I could have choked on that! Within an hour I was feeling so much better, yay! I remember asking Julie Labadie, Dr. Yakes Nurse when I first started treatments - "am I going to be in more pain the closer Dr. Yakes gets to my face"? In the very beginning of my treatments, I didn't even take any pain pills! Her answer was, "You may be surprised". Well, my fears were right though - must have pain pills and lots of steroids after an embolization!
Mark and I have enjoyed our furry babies so much this weekend! Our favorite thing is to all cuddle in bed and spend quality time playing with Hanz and Bella! They are so cute they take my mind off this horrid avm!
Unfortunately, another fun thing I have to deal with, is how much the steroid drys my skin out! My hands are all cracked and bleeding - Mark says he dealt with something similar as a child since he had eczema and still has a flair up once in a while!
I started trying to work with my "Therabite" again, to try and get my mouth open a little wider. I can barely get any food in there and the steroids make me so hungry! If you've seen me lately, I'm definitely finding a way to get the food in my mouth, ha, ha!
I've recently had some slight paralysis on the left side of my face - didn't realize it until about a month ago when I was in the shower and about to get shampoo in my eyes - I couldn't squeeze my left eye closed! The left side of my mouth doesn't move much and that impairs my speech some, and I've also lost hair on the left side of my head. If you look @ me directly, you can see where the right side of my hair looks thicker! Dr. Yakes physician assistant says once the avm is all gone and treatment has been completed, everything should go back to "normal"! Most cases, the paralysis lasts about 6 months or so.
On the brighter side, the weather cleared up enough that the sun was out and we took Hanz and Bella out for a short walk to get some fresh air! I was telling Mom earlier that I don't even "walk" the dogs myself - Mark handles both of them, each on their own leash and I just follow close behind with poop bags and treats! If we keep a decent pace, I can keep up ok! It was good for all of us to get out of the house since we had been closed in for the last 48 hours! Seems lots of the neighbors had the same idea, ran into several people walking their dogs or a couple that was pushing a stroller and had a toddler as well! The little girl stopped to pet our kiddos and was so cute in saying, "it looks to me like you have a little girl dog and a little boy dog, because you have a blue leash and a pink leash"! Mark told her that was very observant on her part! Hanz loves to have people pet him, but Bella is still pretty hyper and jumps about in excitement and that tends to scare the kiddies a little! We have a lady neighbor one block over that has to run out of her house and pet Hanz and Bella if we ever walk by, she really likes them a lot!
Oh and for over a week now, I've had a head full of mucus that I can't ever seem to blow all out! I probably should have gotten an over the counter antihisthemene (sp?), but have gone through a couple of z-packs that I suppose have helped some. I have about another week of steroids and I don't know whether that makes me happy or sad. Happy, so there won't be any more "hot flashes" maybe I can relax enough to sleep a bit better. Or sad, since once the steroids are gone, then I sometimes have trouble with swelling again and that means trying to keep the pain under control. Which leads me back to the oxycontin, a narcotic that makes me soooo drowsy, that when I get home from work, I just want to crawl in bed for a couple of hours and often do! I was telling Mom that needing that nap after work, really takes up all my time in the evening - and this isn't a "nap" to catch up on sleep because I stayed up too late - it's my body wanting to shut down from the meds I'm on! Sometimes I sleep past the time to take my next dose, yadda, yadda, yadda ...! Thru all this though, I do know it could be worse and I'm still pretty darned blessed and lucky to have family and friends that care, a loving husband that puts up with me no matter what state of mind/body I'm in and the two cutest dogs in the world to make me laugh and I get to love every day! I'm really gonna try and put some photos in here really soon! Especially because in 2 days it's Mom's birthday! Ok, the gangs all in bed, so I'm heading that way! Thanks for listening!
Much love and thanks to everyone! Especially my sister Celia - she was telling me about a healing Mass for me on the 16th I believe @ 6pm @ the church on Lantana! Plus, I was telling her I was almost ready for the next book in a series I'm reading for the second time (Diana Gabaldon Outlander Series) and she generously send me a Barnes & Noble gift card on an e-mail to purchase the next book! Yay!
Enjoy the rest of your weekend!
Posted by Dulce at 1:59 AM